Your Guide

Below is your guide to useful websites related to intellectual and developmental disabilities,
education, advocacy and support. We at The Arc Alliance continue to research new and more robust sites and will update this page periodically. Please utilize this resource and contact us if you discover a site that should be added to this resource list.

We trust these links will be of assistance to you as a parent and your family.

Apps For Families

Special Needs Specific Apps –  With over a thousand apps now available to help individuals with special needs it has become increasingly difficult to find and choose the right special needs app. The Friendship Circle App Review gives you the ability to find the perfect special needs app for your child.

Family Resources

Below are several resources provided by Caring 4 Our Kids (They are a  group of parents who have children on the Autism Spectrum or who suffer from inflammatory diseases such as Chronic Fatigue Syndrome or Fibromyalgia. They have come together to curate and create resources that have been helpful to us in the hopes that these will help other parents struggling to care for and to help their children thrive.) The Arc Alliance Appreciates the support and mutual desire to assist all families in support of their children with special and unique needs.

Help Loved Ones with Sensory Overload Enjoy Shopping

Learning Resources

Going to the Orthodontist with CFS

Sesame Street Resources for Parents

How a Trust can help?

Assistive Technology

The Family Center on Technology and Disability

Disability Specific

TFCT&D provides a wide range of resources on instructional and assistive technologies, from introductory fact sheets through CEU’s for practitioners and educators.
The Arc of Pennsylvania The state organization of and for people with mental retardation and related developmental disabilities and their families.
The Arc of the United States The national organization of and for people with mental retardation and related developmental disabilities and their families.
Dave
Nelson’s Autism Page
This page focuses on a particular approach to working with children diagnosed with Autistic Spectrum Disorder, variously called autism, pervasive developmental disorder (PDD), PDD-NOS and Asperger’s syndrome.
Autism
Channel Home Page
Support, information, and access to a chat.
CH.A.D.D. Children and Adults with Hyperactive Attention Deficit Disorder Attention Deficit Disorder, Attention-Deficit/Hyperactivity Disorder, ADD, AD/HD.
Blind Links A comprehensive website serving the needs of individual’s with visual impairment
Brain Injury Association The mission of the Brain Injury Association is to create a better future
through brain injury prevention, research, education and advocacy.
National Down Syndrome Society A comprehensive, on-line information source about Down syndrome.
Down
Syndrome on the Internet.
This is a great site for links to information on Down Syndrome.
UPSIDE!
Down Syndrome Society
An informal society of individuals, parents, and friends involved with the world of Down Syndrome.
International Dyslexia Association The International Dyslexia Association actively promotes effective teaching approaches and related clinical educational intervention strategies for people with Dyslexia.
FRAXA Research
Foundation Home Page
A great link for information on Fragile X.
Fragile X Homepage Information and some great links regarding Fragile X.
International Rett Syndrome Association Information and links on Rett Syndrone.

Adult Links

The Arc of Pennsylvania The state organization of and for people with mental retardation and related developmental disabilities and their families.
The Arc of the United States The national organization of and for people with mental retardation and related developmental disabilities and their families.
National Down Syndrome Society A comprehensive, on-line information source about Down Syndrome.
Speaking for Ourselves A self-advocacy organization for adults with disabilities.

Educational Links

CH.A.D.D. Children and Adults with Hyperactive Attention Deficit Disorder Attention Deficit Disorder, Attention-Deficit/Hyperactivity Disorder, ADD, AD/HD.
Child Development Institute Provides comprehensive information, research studies as well as practical guides for parents and teachers related to various disorders found in children and adolescents. Links to support groups, research institutes, books, tapes, educational games and self-help products are also included.
Division for Early Childhood of the Council for Exceptional Children Non-profit organization advocating for individuals who work with or on behalf of children with special needs, birth through age eight, and their families.
FRAXA Research
Foundation Home Page
Information and Links referencing Fragile X.
Head Start Bureau Homepage Head Start is a child development program that has served low-income children and their families since 1965.
Internet Resources for Special Children This site is a very comprehensive links site for information regarding children with special needs.
LD Online Interactive guide to learning disabilities for parents, teachers and children.
National Information Center for Children and Youth with Disabilities NICHCY is the national information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals. They focus on children and youth (birth to age 22).
Wrights law Hundreds of articles, cases, newsletters, and other information about special education law and advocacy.
 Scholarships – College  There are a large number of scholarships for students with disabilities from outside sources, but these can often be difficult to find, even using popular online scholarship locator tools.

To assist in this search, we’ve created a list of the current disability scholarships being offered from various foundations and organizations.

Advocacy Organizations

The Arc of the United States The national organization of and for people with mental retardation and related developmental disabilities and their families.
The Arc of Pennsylvania The state organization of and for people with mental retardation and related developmental disabilities and their families.
Center for Law
and Education
The Center for Law and Education (CLE) strives to make the right of all students to quality education a reality throughout the nation and to help enable communities to address their own public education problems effectively, with an emphasis on assistance to low-income students and communities.
Educational Law Center Information on systemic issues, law library and parent-advocate consulting line.
Parent Advocacy Coalition for Educational
Rights
PACER is a nonprofit organization that helps parents and families of children with disabilities. They have 25 programs assisting individuals with and without disabilities.
TASH An international association of people with disabilities, their family members, other advocates, and professionals fighting for a society in which inclusion of all people in all aspects of society is the norm.

Local State and Federal Organizations

Find your federal, state and local representatives using your zip code Find out who represents you, send e-mails to your elected officials, track votes by your members of Congress.
Montgomery County Mental Health/Mental Retardation The Mental Health/Mental Retardation/Drug and Alcohol Program provides a variety of services to eligible Montgomery County residents.
OSERS IDEA ’97 Home Page Information: U.S. Deptartment of Education, Office of Special Education – Homepage.
OSU Center for Special Needs GLARRC works with the State Special Education Agencies of the following states: Illinois Indiana Iowa Michigan Minnesota Missouri Ohio Pennsylvania Wisconsin as the states seek ways to improve their provision of quality education and related services to infants, toddlers, children and youth with disabilities and their families.
Pennsylvania Department of Education Use the “fast find” drop down menus on this site to get to special education information.
Social Security Online Information on Social Security processes and procedures including SS Disability.

Below is a toolkit to help empower our disabled population with their options and their rights.

Shared by: EducatorLabs.org

Home Modification to Promote Independent Living:  https://www.disability.gov/resource/home-modifications-to-promote-independent-living/

Disability Accommodation Cost Guide:  http://www.homeadvisor.com/cost/disability-accommodation/

Home Safety for People with Disabilities:  http://www.redcross.org/prepare/location/home-family/disabilities

Fire Safety & Disabilities Guide:  http://www.improvenet.com/a/fire-safety-and-disabilities-guide

Guide to Transportation:  https://www.disability.gov/resource/disability-govs-guide-transportation/

Rights for Those With Hearing Loss:  http://www.ovationhearing.com/resources/rights-for-those-with-hearing-loss

Increasing Physical Activity among Adults with Disabilities:  http://www.cdc.gov/ncbddd/disabilityandhealth/pa.html

Chronic Pain Relief with Swimming Exercises:  http://blog.intheswim.com/chronic-pain-relief-with-swimming-exercises/

Stay Active with a Disability: Quick Tips:  http://healthfinder.gov/HealthTopics/Category/health-conditions-and-diseases/obesity/stay-active-with-a-disability-quick-tips

Personal Finance Guide for People with Disabilities:  http://www.calculators.org/savings/people-with-disabilities.php

The Best Hearing Aids for 2017 guide compares popular brands, and educates readers on important features to consider when selecting a hearing aid. https://www.consumeraffairs.com/health/hearing/