advocacy

Someone In Our Corner – by Anne Marie Newell

My son Matthew's journey started when my son was diagnosed with PDD at 21 months.  We were soon thereafter introduced to MARC because we were told that he was entitled to certain therapies at home, including speech, OT and PT too, I believe.  These people were frequent visitors in our home to help Matthew bridge the gap in the areas that needed boosting, so they were coming often 2x per week.  As you can imagine, the therapists would eventually feel like friends because of the amount of time they spend with you and your child.  It is a good thing to have when you are just starting to get used to the "new life" with the impact the diagnosis can have on you as the [...]

By | 2018-03-23T11:15:29+00:00 March 23rd, 2018|Autism, Blog, Blogroll, Stories|0 Comments

AHCA/Medicaid block grants – potential negative impact

On Wednesday May 17, 2017 Julie Gerhart-Rothholz,  participated in a press conference with Senator Casey & Senator Maggie Hassan and an Occupational Therapist to address the AHCA and Medicaid block grants. As a parent and Boar Member of The Arc Alliance, Julie addressed the topic of how AHCA/Medicaid block grants can negatively impact her son Evan. Julie ended the session providing a significant context on this challenging issue. Link to Video It is extremely important for each of us to contact our legislators and tell them the potential impact these proposed changes will have on our loved ones. Join with Julie and let your voice be heard locally, state wide and nationally! Link to find your Legislator

By | 2017-05-18T08:38:50+00:00 May 18th, 2017|Blog, Blogroll, News & Views, Stories|0 Comments

Paul Stengle’s interview of Nancy Thaler Deputy Secretary of the Office of Developmental Programs

On April 4th, 2017 Paul Stengle, CEO of The Arc Alliance, interviewed Nancy Thaler, Deputy Secretary of the Office of Developmental Programs (ODP), about updates with ODP and the potential impact on individuals and families. Paul Stangle and The Arc Alliance community, thanks Deputy Secretary Thaler, for her willingness to participate and her candid responses in this interview. As you will see there are significant changes taking place and The Arc Alliance is here for you and your family with resources and access to decision makers at each level. Below is the link to the full 27 minute interview. LINK To full interview taped Tuesday April 4th You are also able to view clips of the interview on The Arc Alliance Facebook Page. LINK TO [...]

By | 2017-04-05T12:40:23+00:00 April 5th, 2017|BCTV shows, Blog, Blogroll, In the news, News & Views|0 Comments

Help Close State Centers for Persons with Developmental Disabilities

Please contact your state representative and ask them to sign on as a cosponsor to Rep. Kerry Benninghoff (R-Centre) memo that requires Department of Human Services (DHS) to develop a plan to close state centers by January 1, 2023. Do you know that Pennsylvania has 5 State Centers for Individuals with Intellectual & developmental disabilities? Thankfully there is a plan in place to close the Hamburg State Center, relocating 80 individuals into the community by 2018/19. However that means our state still has 4 State Centers (Like Pennhurst) in existence housing approximately 800+-individuals! This must end! Help those individuals still segregated and isolated in state centers by contacting your legislator and urging them to sign onto Rep. Kerry Benninghoff's Memo. Below is the link. [...]

By | 2017-03-29T11:25:32+00:00 March 29th, 2017|Blog, Blogroll|0 Comments

Berks County Commissioner, Christian Y. Leinbach Presents Paul Stengle, CEO of The Arc Alliance  Intellectual and Developmental Disabilities Awareness Month Proclamation for March 2017     Today we are pleased to express our appreciation to the Commissioners of Berks County as County Commissioner, Christian Y. Leinbach provides Paul Stengle with a county proclamation affirming March as Developmental Disabilities Awareness Month. The Arc movement is banding together with its 700+ network of chapters across the nation to mark Developmental Disability (DD) Awareness Month in March.  Powered by the energy of self-advocates, families and volunteers around the country, the month will commemorate the progress toward improving the lives of people with intellectual and developmental disabilities (I/DD) and stress the challenges that remain in achieving full inclusion for people with I/DD. Nearly a quarter [...]

By | 2017-03-13T15:48:44+00:00 March 13th, 2017|Blog, Blogroll, Stories|0 Comments

Hamburg State Center Closure Hearings

In support of Individuals with intellectual and developmental disabilities, The Arc Alliance has been advocating and working with legislators and administrations for decades to resolve the five remaining state funded centers. The Arc Alliance is proud to commend Governor Tom Wolf, Department of Human Services Secretary Ted Dallas and all those in support for their courageous action in announcing the closure of the Hamburg State Center. Secretary Dallas expects the closure to take approximately 18-24 months. “For the 30 years I have been CEO of The Arc Alliance, our goal has been to provide individuals with the freedom of choice and support to live as independent a life as possible. Research has shown, people with developmental disabilities function better when living in the community with [...]

By | 2017-02-01T11:18:29+00:00 February 1st, 2017|Arc news, Blog, Blogroll, News & Views, Stories|0 Comments

Chandler Balch – To work or continue your education; that is the question.

Once your son or daughter is finished with their high school education, a decision needs to be made as to whether they get a job or continue their education. That is where OVR can help you. The last time we communicated, I talked about waivers and what it takes to apply for them. Today I want to touch on The Office of Vocational Rehabilitation (OVR). Many people with disabilities (and other people needing assistance) use OVR to help them obtain a job or continue their education.  Like everything else that we are going to discuss in the next couple blogs, applying for OVR is another process.  We just have to take it one step at a time.  For a complete list of resources that [...]

By | 2017-01-17T08:58:05+00:00 January 17th, 2017|Blog, Blogroll, Chandler Balch|0 Comments

State Announces the closure of the Hamburg State Center

In support of Individuals with intellectual and developmental disabilities, The Arc Alliance has been advocating and working with legislators and administrations for decades to resolve the five remaining state funded centers. Today, The Arc Alliance is proud to commend Governor Tom Wolf, Department of Human Services Secretary Ted Dallas and all those in support for their courageous action in announcing the closure of the Hamburg State Center. Secretary Dallas expects the closure to take approximately 18-24 months. “For the 30 years I have been CEO of The Arc Alliance, my and The Arc Alliance's goal has been to provide individuals with the freedom of choice and the support to live as independent a life as possible. The announced closure of the Hamburg State Center is another [...]

By | 2017-01-12T11:56:08+00:00 January 12th, 2017|Arc news, Blog, Blogroll|0 Comments

July 1, 2016 – Pennsylvania Budget – Dismayed…to Angered…to Outraged!

The Arc of Pennsylvania outraged at 2016-2017 budget  The Arc of Pennsylvania is outraged that the General Assembly passed a budget that further deteriorates the community support system for Pennsylvanians with intellectual and developmental disabilities. Following on the heels of the prolonged budget impasse that left the disability system reeling financially, the 2016-2017 budget phenomenally fails to address serious issues that threaten to throw Pennsylvanians with disabilities back into segregated institutions. The Arc of Pennsylvania and its chapters have met with hundreds of legislators and the Governor to explain what is happening to the disability supports system in Pennsylvania, but in light of the expected final 2016-2017 state budget it appears that the urgency of these issues has been lost on our elected officials [...]

By | 2016-07-01T14:22:28+00:00 July 1st, 2016|Action alerts, Blog, Blogroll, In the news, News & Views|0 Comments

Representative Thomas Murt Disabilities Awareness Walk – April 3, 2016

Rep. Thomas Murt Addressing Participants at Awareness Walk On a chilly but sunny day several hundred individuals joined Representative Thomas Murt on an awareness walk highlighting intellectual and developmental disabilities. Rep. Murt is a devoted advocate for the rights of individuals with disabilities within the Pennsylvania House of Representatives. From coordinating awareness events like this walk in Horsham, to advocating and increasing funds devoted to reducing the I/DD and Autism Waiting list for individual services Rep. Murt champions the issues and concerns facing individuals and families in our community. The Arc Alliance commends and thanks Rep. Murt for all his work and support. Scott Camilleri & Rep. Thomas Murt addressing families Scott Camilleri, Executive Director of The Arc Alliance Foundation [...]

The Arc Alliance is pleased to provide Staff with the following resources, publications, forms, and links to aid you in serving and supporting families in our community.

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Staff Resource Pages

Upcoming Events

  1. Supports Coordination Information Night

    April 19 @ 6:00 pm - 7:00 pm
  2. Reading Phillies Family Fun Night

    May 4 @ 7:00 pm - 10:00 pm