Drew has faced challenges with courage and perseverance. Diagnosed with epilepsy at age 12, his seizures have often disrupted his daily life, leading to frequent falls and hospital visits. Over time, the toll of his condition became clearer when, three years ago, Drew experienced a major seizure, worsened by side effects from a medication. With the guidance of his medical team and Supports Coordinator (SC), his treatment was carefully adjusted, resulting in improved seizure control. Today, Drew can go for months without an episode, and he now wears a helmet for added safety and peace of mind.

For the first 20 years of his life, Drew lived at home with his family. His SC, Sue Mumbauer, recognized the increasing demands on his parents and helped advocate for a placement at a group home through the Indian Creek Foundation. While this was a difficult decision, Drew’s family knew it was the best step for his independence and well-being. Drew’s mother reflects that while “the head had to say yes, the heart didn’t want to,” knowing she’d miss her son. But the transition has brought Drew stability and routine, and he now attends a BARC Day Program three days a week, staying active and engaged.

Drew’s SC has been a constant support, overseeing his care and helping his family navigate complex decisions, including questions about guardianship and long-term planning. For Drew’s mother, the guidance and expertise of her SC have been a lifeline, enabling her to focus on being there for Drew. She says, “It changed our lives. I don’t have to do it alone; that makes life a lot easier.”

Today, Drew’s mom visits him three times a week, and they spend quality time together. Drew enjoys outings, especially spending time outdoors with his mom. She encourages other families in the IDD/A community to seek out the guidance of a Supports Coordinator through The Arc Alliance, knowing firsthand how much difference it has made in Drew’s life.